Endometriosis Association of Ireland General Election Manifesto 2020

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General Election 2020 provides an opportunity to request that the next Government (vote on 8th February 2020) will work with the Endometriosis Association of Ireland to help us improve the diagnosis and treatment of those living with endometriosis and adenomyosis in Ireland.

The EAI campaign manifesto outlines the challenges facing those living with endometriosis and adenomyosis.

We are asking you all to use your voice to ensure that the discussions, pledges and support (by current TDs and Senators) are not only maintained but developed upon in the next Government.

  • To reduce the delay in diagnosis of those with endometriosis and adenomyosis in Ireland. It is currently an average of 9 years, with those presenting with pain symptoms below 25 facing a longer delay than those over 25.
  • To advance the education of the general public and those in the medical or similar professions concerning the causes, effects and treatment of endometriosis and adenomyosis.
  • To provide one accredited multidisciplinary centre of care for endometriosis and adenomyosis that focuses on current best practice and uses dedicated services.
  • To secure funding to support the study, research into and discussion on all matters relating to causes, alleviation and cure of endometriosis and related conditions, and with particular regard to improving the quality of life of those affected by endometriosis.

You can email your local candidate with the message below: The Journal.ie has links with email addresses for your constituency. 

Dear

I am a voter in your constituency and I am getting in touch to ask for your support for those living with endometriosis.  Endometriosis is a condition that affects mainly women and is the cause of severe pain and infertility. Women are losing out on education, work, family and social opportunities.  There are an estimated 155,000 women in Ireland living with this condition, a prevalence of 1 in 10 yet it remains misdiagnosed, undiagnosed and mistreated for many women. There is a lack of public and medical professional awareness of endometriosis and adenomyosis.  I encourage you to read some of the recent media coverage on endometriosis following the Leinster House/Dept of Health presentation and also the factual information on www.endometriosis.ie

General Election 2020 – and your candidacy – presents an important opportunity to further support the work of the Endometriosis Association of Ireland, a small, unfunded charity and enable Ireland to become a leader in endometriosis education, diagnosis and treatment and support. Ireland can become one of the first countries to reduce the delay to diagnosis. Currently, in Ireland, this delay is an average of 9 years with many women waiting considerably longer despite frequent medical appointments. 

I encourage you to sign The Endometriosis Association of Ireland manifesto and to publicly demonstrate your support for the endometriosis community.  Future generations of women in Ireland can be spared the delays in diagnosis, the inaccessibility of adequate care and the distress of being made to feel “it is all in your head”. You can help stop the export of yet another women’s health issue – where women are using the HSE Cross Border Directive, Private Insurance and Self Paying (via loans) to seek experienced surgical care in UK, Europe and the USA. 

The Endometriosis of Ireland Manifesto is short and simple.

  • To reduce the delay in diagnosis of those with endometriosis and adenomyosis in Ireland. It is currently an average of 9 years, with those presenting with pain symptoms below 25 facing a longer delay than those over 25.
  • To advance the education of the general public and those in the medical or similar professions concerning the causes, effects and treatment of endometriosis and adenomyosis.
  • To provide one accredited multidisciplinary centre of care for endometriosis and adenomyosis that focuses on current best practice and uses dedicated services. 
  • To secure funding to support the study, research into and discussion on all matters relating to causes, alleviation and cure of endometriosis and related conditions, and with particular regard to improving the quality of life of those affected by endometriosis.

CLICK TO SIGN – https://forms.gle/Qm5hTcC53m9b3eL46

Once you have pledged your support, please can I ask you to let me know by sharing the message on social media using the hashtag: #EndometriosisIsNow

If you do not wish to support this campaign, could you please tell me why?

Thank you for your support,

 

 

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