Wow, thank you so much for all this info! It’s super generous of you to share and super helpful to me, and no doubt others.
All the issues you mention are pretty fundamental, I think.
1. This is disappointing and strange, and wouldn’t inspire confidence or trust. I also simply don’t understand poor listening in consultations, the patient is the person with the unique information that will inform differentiated treatment to that of another patient. Is this pain specialist based in Cork?
2. This is pretty shocking. Especially so given what you described about the length of time spent in your consultation outlining more general, basic information. It would seem to me essential to clearly state the amount of incisions necessary and discuss if there’s some kind of range, so as you’re consenting to this.
3. All of this is both disappointing and shocking. Thankfully you, the nurse and the doctor onsite were conscientious. It’s concerning that your care at such a vulnerable stage was better addressed by yourself and others.
4. Yeah, I get you – that’s all fair.
Yes, that’s interesting what you say about communication – it is good to have a direct line, albeit if he didn’t answer your question re the number of incisions.
Yeah, I get you. It’s so tricky trying to figure out who to go to, and he seems highly skilled. It’s interesting what you say about being in his little endo box. One of the reasons I leaned towards him was reading online testimonies where he spotted issues that weren’t endo. This to me showed an openness or lack of bias, as opposed to attributing everything to endo which could be a trap doctors fall into in their well-intentioned advocacy.
Thank you so much again for sharing all that. And for the context of your journey, it’s hopeful to hear that you were symptom free for 23 years! In my case, symptom onset began circa three years ago, in my late twenties. (I literally have said thousands of times over the years prior to any issue manifesting, ‘I’m so lucky with my cycle!’). The growth in pervasiveness and intensity of symptoms has been a gradual process, as has been my awareness that something was amiss at all. From reading the experience of others, I’m very lucky to have gone so long without an issue arising and that my symptoms are manageable currently. Yet, that being so, it’s life-altering. And it all feels like such alien territory.
I’m really glad to hear that your surgery went well. And I’m so sorry to hear about the nerve pain, I hope that it can be alleviated. In the meantime, this might be of interest to you – I recently bought the sheet music for Federico Mompou’s ‘Musica Callada’, beautiful miniature pieces. Check out ‘Angelico’ and ‘Molto Lento e Tranquillo’. They might be your next piano pieces!