First of all, I am so sorry to hear you’re sufferings so much. It makes me so sad to read all this. I can relate to so much of it. I have endometriosis and adenomyosis and I don’t feel like I have a clear path of treatment at the moment. Recently, I’ve had a Psoas compartment nerve block on my right side. I get what you described (crippling pain going into groin, pelvis, hip, down leg and into calf and ankle) on my right side. The nerve block was intended to at least help with some of that. My uterus is basically in a state of contraction at all times. It’s awful. I see a pain management doctor and while that has been a game-changer, I’d still like to be rid of these awful diseases. I found a good support group online on Facebook with thousands of women (mostly the US) and have gotten a lot of information there and a sense of community. Doctors in Ireland, at least, are not in any way equipped to deal with adenomyosis.
You’re not alone. Sending support and solidarity.