Fiona: ‘I feel like endometriosis has taken over my life’
My story began when I first got my period age 11. I was always in pain, missing school, etc. I was taken to the doctor who told me this was part of life.
Laura’s story: ‘current gynaecological resources are unacceptable’
While I can’t speak highly enough of the hospital staff that I encountered (surgeons, nurses and all staff alike), I could see myself slipping down their list of priorities once I was not in immediate need of attention.
Katie’s endometriosis experience
I would love to have another child but unfortunately, I don’t see it happening again without more surgery, and I’m not in a position to travel to a country that recognises the disease. As a woman I feel constantly let down by this country.
An EAI member’s eight tips for flying after surgery
Many people fly to access excision surgeons outside of Ireland. Here are some useful tips to help you manage your flight.
Claire’s endometriosis journey
If I could get any point across, it would be to be aware of what is normal and not. If your periods are excessively heavy, or if the pain is interfering with your daily life, you should get it checked out.
Travelling for endometriosis care – Christine’s experience
My surgery in Birmingham was life-changing. I finally got my endometriosis diagnosis after ten years of suffering, but it came at a great cost both financially and emotionally. Recovering so far away from home and not having my family around me was tough.
Eimear’s Journey With Endometriosis
My hope for women battling with Endometriosis is that they are listened to, and that those listening really hear the suffering and pain that these women are describing. We are not women looking for attention, we are not women behaving like drama queens and we are certainly not women with pain that is in our heads.
EAI Hot Water Bottle Pins – Raising Awareness and Funds
Everyone loves a hot water bottle, but none more than those living with endometriosis and adenomyosis! Show your love on your sleeve, lapel, hat, bag!
Michelle – Undiagnosed, symptomatic, worried.
I am one of the lucky ones…well at least that if I have endometriosis at all as I am, as yet, undiagnosed.. when I say I am lucky I mean that I got my period aged 11 and had them perfectly normally like clockwork every 28 days aside from one random agonising one age 24 that had me rolling around in pain.
Research Request: Sleep and Chronic Pain
The new SCRIP study, being conducted at University College London’s Lifespan Learning and Sleep Laboratory, led by doctoral researcher Zoe Zambelli is trying to understand what advice and services people with chronic pain are accessing regarding sleep management as well as pain management.