Katie’s endometriosis experience

Woman in pain holding hot water bottle

I would love to have another child but unfortunately, I don’t see it happening again without more surgery, and I’m not in a position to travel to a country that recognises the disease. As a woman I feel constantly let down by this country.

Claire’s endometriosis journey

Hands holding medication

If I could get any point across, it would be to be aware of what is normal and not. If your periods are excessively heavy, or if the pain is interfering with your daily life, you should get it checked out.

Travelling for endometriosis care – Christine’s experience

Woman looking out of plane window

My surgery in Birmingham was life-changing. I finally got my endometriosis diagnosis after ten years of suffering, but it came at a great cost both financially and emotionally. Recovering so far away from home and not having my family around me was tough.

Eimear’s Journey With Endometriosis

My hope for women battling with Endometriosis is that they are listened to, and that those listening really hear the suffering and pain that these women are describing. We are not women looking for attention, we are not women behaving like drama queens and we are certainly not women with pain that is in our heads.

Michelle – Undiagnosed, symptomatic, worried.

I am one of the lucky ones…well at least that if I have endometriosis at all as I am, as yet, undiagnosed.. when I say I am lucky I mean that I got my period aged 11 and had them perfectly normally like clockwork every 28 days aside from one random agonising one age 24 that had me rolling around in pain.

Research Request: Sleep and Chronic Pain

The new SCRIP study, being conducted at University College London’s Lifespan Learning and Sleep Laboratory, led by doctoral researcher Zoe Zambelli is trying to understand what advice and services people with chronic pain are accessing regarding sleep management as well as pain management.